• Telehealth
  • Contact
  • Bill Pay
  • Careers
Shodair-Sticky-LogoShodair-Sticky-LogoShodair-Sticky-LogoShodair-Sticky-Logo
  • About
    • Mission and History
    • Services
    • Campus Map
    • Culture at Shodair
    • Blueprint of Hope
    • Future of Shodair
    • Leadership
    • Board Members
    • Contact
  • Genetics
    • Medical Genetic Services
    • Laboratory
    • Forms
    • Genetics Staff
    • Wide Open Spaces
  • Psychiatry
    • Psychiatry Services
      • Outpatient Services
      • Acute Psychiatric Inpatient Program
      • Adolescent Residential Treatment
      • Case Management
      • Allied Therapy Department
      • CSCT Learning Center
    • School at Shodair
      • Educators
    • Request Admission
    • Paying For Services
    • Psychiatry Staff
  • Resources
    • Financial Assistance
    • Suicide Prevention Resources
    • Parenting Self-Care Tips
    • Parenting Resources
    • CHNA & CHIP
    • MHA – Mental Health America Toolkit
    • Pricing Transparency
    • Healthy Children
  • Foundation
    • CMN 2022 Champion
    • Past Champion Children
    • Friends of Shodair
  • Community
    • Community Commitment
    • Contest Winners
    • Event Calendar
    • Happenings
  • Donate
    • Ways to Give
    • Where Donations Go
✕
Abryanna Nelson – 2010
January 22, 2019
Samantha Faulkner – 2012
January 22, 2019

Sotara Barnaby – 2011

Past Champion Children

  • CMN 2022 Champion
      | 
  • Past Champion Children
      | 
  • Friends of Shodair

Sotara Barnaby, 2011

. . .

Sotara Barnaby, a 10-year-old from Pablo, is the happiest girl you’ll ever meet, even though she suffers from a rare genetic condition called Rubinstein-Taybi syndrome.

The Shodair genetics team first evaluated Sotara when she was 6 years old because of developmental delays and short stature. They charted Sotara’s growth and development over the next three years and, as is the case with many genetic conditions, the features of Rubinstein-Taybi became more recognizable over time. Sotara was diagnosed in 2010 at age 9 with Rubinstein-Taybi. The diagnosis gave her family an explanation and a genetic basis for Sotara’s growth pattern and delays. The genetics team at Shodair also provided critical medical and developmental management guidance.

It has been estimated that approximately 1 out of 125,000 people has Rubinstein-Taybi syndrome, a condition that occurs with equal frequency in both males and females. Symptoms and signs of the condition vary with each individual and can include heart and kidney defects, eye abnormalities, and dental problems. People with this condition also have an increased risk of developing cancerous and noncancerous tumors. There is also an increased risk of leukemia.

As one of her symptoms of Rubinstein-Taybi, Sotara has had some significant developmental delays and cannot communicate as easily as other children her age, and this difficulty in communication sometimes makes it hard for her to make friends and be accepted by her peers at school. Undaunted, she faces each day with a smile and is ready to make new friends.

Sotara has an engaging personality and a smile as big as Montana. She loves music, (Jonas Brothers and Hannah Montana), horseback riding along the Mission Mountains, doing physical therapy with her Wii, and participating in Native American dancing on the reservation with her grandmother.

PAST CHAMPION CHILDREN

. . .

February 24, 2022

Bella Nyman – 2019

August 2, 2019

2022 CMN Champion for Montana

January 22, 2019

Katie Ross – 2018

January 22, 2019

Zeesy Bruk – 2016-2017

January 22, 2019

Jordynn Hardman – 2015

January 22, 2019

Jason Albin – 2014

January 22, 2019

Landen Phillips – 2013

January 22, 2019

Samantha Faulkner – 2012

January 22, 2019

Abryanna Nelson – 2010

January 22, 2019

Zach Bell – 2009

Share

Related posts

February 24, 2022

Bella Nyman – 2019


Read more
August 2, 2019

2022 CMN Champion for Montana


Read more
January 22, 2019

Katie Ross – 2018


Read more


Careers Happenings Bill Pay Patient Portal Contact Us
Log In

2020 Business of the Year


© 2023 Shodair Children’s Hospital Montana, a not-for-profit, section 501(c)(3) - All Rights Reserved.
Shodair Children’s Hospital provides mental health and genetic services across Montana regardless of one’s ability to pay.
2755 Colonial Drive PO Box 5539 | Helena, Montana 59604 | Phone: 406.444.7500 | Toll Free: 1.800.447.6614 | Fax: 406.884.2085. | Privacy Policy | Refund Policy
Notice of Privacy Practices | Site by The Wendt Agency